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The UK Genethics Club was established in November 2001 in order to provide a national forum of ethics support for the profession of clinical genetics in the UK. The forum brings together health professionals, medical ethicists and lawyers and support is provided through detailed discussion of cases and sharing of good practice. Clinical genetics professionals had previously voiced concerns about making extremely difficult ethical decisions, with profound implications, in something of a vacuum. Professionals saw a lack of guidance in the area and lack of time for discussion of difficult cases as reasons for this. This paper describes the origins of the group and gives (anonymized) examples of some of the types of issues discussed. © 2006, Royal Society of Medicine Press. All rights reserved.

Original publication

DOI

10.1258/147775006779151184

Type

Journal article

Journal

Clinical Ethics

Publication Date

01/12/2006

Volume

1

Pages

219 - 223